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Comments on: My Imaginary Support Group Gets in My Face https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/ Sun, 20 Aug 2017 16:55:53 +0000 hourly 1 https://wordpress.org/?v=6.5.3 By: jason https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-1021 Sun, 18 Aug 2013 05:07:41 +0000 http://www.jasonhague.com/?p=641#comment-1021 In reply to kristy smith.

Well, that’s too bad. Private schools are going to have to figure out this issue sooner or later. It’s trickier for them logistically speaking because of funding sources, etc, but I’m sorry the relational side wasn’t awesome. It’s going to be a learning curve for these schools across the board in this area. Here’s hoping you get into a great routine with Bailey, and that you both enjoy it!

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By: kristy smith https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-1019 Sat, 17 Aug 2013 10:36:52 +0000 http://www.jasonhague.com/?p=641#comment-1019 In reply to jason.

long story, but we are now homeschooling bailey. we are happy with our decision but not so happy with the way we/our son was treated in the process of getting to this point. but we are still seeking God as we continue to work with the school to address the way they are making families feel. feeling hopeful for change (even if only in the distant future) 🙂

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By: jason https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-986 Thu, 01 Aug 2013 19:15:18 +0000 http://www.jasonhague.com/?p=641#comment-986 In reply to kristy smith.

Interesting timing, indeed! I think a lot of private schools don’t know what to do about autism yet, so it doesn’t surprise me. Hang in there and keep praying. You’ll know what to say. You got this…

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By: kristy smith https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-985 Thu, 01 Aug 2013 11:47:10 +0000 http://www.jasonhague.com/?p=641#comment-985 In reply to jason.

very interesting that i made this comment when i did, my son has just started school last week and there are issues with them not wanting him there more then a few hours a day despite the fact that he is coping really well (for an autistic child). they can’t (won’t?) tell us why they want to reduce his hrs or what problem there is, just being very vague but firm – no negotiation what so ever.
this saddens me deeply as it is a christian school and has been losing many enrolments to the local public school due to the inflexibility of the current primary coordinator (and this new teacher too now). i head up a parent prayer group at the school and we have been praying over this exact issue for weeks. suddenly i find my own son in the middle of their inflexible, unfair, exclusive approach. a large part of me wants to just bend to their whims and reduce his hours at school to whatever they think (he is very high functioning by the way so it doesn’t make any sense at all!!!). but then i think of all the other families that didn’t have the education to know how to fight (i have an early childhood education degree) or the commitment to christian education that i have. for the reputation of the school and therefore the gospel i feel that i have to fight for change, also its a way to advocate for those families that feel powerless to fight for themselves. i just hate the idea of ‘winning’ this battle and then having to front up to that teacher everyday for the rest of the year. and I’m going to be working one morning a week there next year under that primary coordinator. I’m normally the type to avoid conflicts etc. so this is really scary stuff for me but once again, feel that this is an opportunity given by God to make a difference. gulp

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By: jason https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-983 Thu, 01 Aug 2013 06:41:20 +0000 http://www.jasonhague.com/?p=641#comment-983 “Let’s follow God’s lead and let Him use us for His message, whatever it may be.”

Thank you, Becky. This is a tremendous encouragement.

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By: jason https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-982 Thu, 01 Aug 2013 06:38:49 +0000 http://www.jasonhague.com/?p=641#comment-982 In reply to kristy smith.

You’re right, Kristy. We don’t live in isolated caves. We need to speak up… Thanks for the encouragement.

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By: jason https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-981 Thu, 01 Aug 2013 02:56:20 +0000 http://www.jasonhague.com/?p=641#comment-981 In reply to Janae.

Yep! And guess how I can tell you typed that on your phone… 😉

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By: Becky R. https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-980 Wed, 31 Jul 2013 23:33:54 +0000 http://www.jasonhague.com/?p=641#comment-980 From one Autism parent to another- I totally get it. Both of my boys have Autism (5-1/2 and 3). I don’t want to be one of those parents that tells you we are the same, comparing my life or my kids to yours saying we are walking the same journey – because we are not. Our kids are different, our families are different, and our lives are different. But what I do get is that it hurts, it’s hard, and you feel like no one understands.
I don’t know you personally – but was referred to your blog by a friend – who heard about you from their family member. He was an old friend that we had met in ministry years ago, life took us different directions and my husband and I hadn’t spoken to him in probably 3 years. He was calling to check on us (back in Feb 2013) and offer his prayers and support because he had heard our oldest was about to have brain surgery (for an un-related condition). You see he had heard about it because we had run into another old friend (from the same ministry group) that happened to be visiting our church one Sunday about 2 weeks before the surgery was planned to take place. After we met that Sunday they felt led to share with these other mutual friends what was going on – and the phone call that evening was quite a surprise for us. When we caught him up on our life and the challenges our family was facing (including the Autism) – he proceeded to share with us how he had just had a conversation the day before while visiting with family in OR. They had read your blog about Jack and his striped shirt. He felt that maybe your writing could be an encouragement to our family as we walk our journey.
He was right. You are an encouragement. Not because you pretend to have it all figured out. Not because you write about all the ways God is going to change things or perform a miracle in your son. And not because you pretend to understand, or over-advocate, or spout off scriptures that explains why everything is okay and we are supposed to feel okay about it. You are an encouragement because you DON’T write those things. You are an encouragement because you write from the deepest parts of your heart and soul – sharing your raw feelings of fear, doubt, sadness, and pain. You write not as a Pastor – but as Jack’s Daddy. THAT is why you are an encouragement.
Don’t doubt the impact your writing has. As a writer myself I have taken myself down that same road (even recently – how timely your blog is). Look how many people God took your message through to get to me? From one writer to another – let’s follow God’s lead and let Him use us for His message, whatever it may be.
Thank you for sharing. I have been struggling myself for weeks picking up my writing again. I think it is time for me too. God Bless.

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By: kristy smith https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-979 Fri, 26 Jul 2013 02:33:16 +0000 http://www.jasonhague.com/?p=641#comment-979 thanks for sharing, I’ve missed you 🙂
you choked me up. i often feel the same. I’m over the controversy, over trying to ‘educate’ others, share new ideas, share my story to have it analysed and criticised, to BE criticised! i just want to hide away and get on with my life with my family. but then God challenges my selfishness, this life is not about me and my life, its about glorifying Him and reaching out to others. it just happens that autism is a big part of our lives now so that is what I will use to glorify God and reach out to others. Romans 8:28. trying to go with Gods plan to use all things…
bless you brother.

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By: Janae https://www.jasonhague.com/2013/07/24/my-imaginary-support-group-gets-in-my-face/#comment-978 Thu, 25 Jul 2013 06:44:34 +0000 http://www.jasonhague.com/?p=641#comment-978 Yes it does! It counts a lot! He had se se to walk o. Sidewalk and even more sense to know where he wanted to go… Inge smart ones head to Miss Janae”s 🙂 xxxxx

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