You Are Enough (A Letter to My Autistic Son on his 15th Birthday)

Dear Jack,

Over the past several months, you and mom have been working at the kitchen table with your communication device. Since spoken words are still so tricky for you, we’re exploring this other way of talking. You touch the screen and choose between picture icons, common words, and a qwerty keyboard. When you find what you want, you string the words together, and the iPad says them aloud: “I want pizza.”

We’re not sure whether this will, in time, become your preferred way of talking. After all, you can tell us with your lips that you want pizza. You do that kind of thing all the time. But something different has started to happen with this new way. You’ve started making observations.

“Can you tell me something about this picture?” Mom will ask, sometimes with the help of the teachers on Zoom. It’s usually a picture of something you know: Mike Wazowski, or Kermit the Frog, or maybe even a real frog. This time, it was Moana.

I think the request didn’t make sense to you at first. Why would we want to know what you see in the picture? Can’t we see it ourselves? But they kept asking you, and you started to play along.

“Moana is pretty,” you said with the device.

Well then. Yes. Yes, she is. I’m not at all surprised you noticed that. You’re turning fifteen, after all. I was younger than you are now when Beauty and the Beast came out, and I noticed the same thing about Belle. Part of me is still a little bit in love with her, I think. So no, I wasn’t surprised at all. But we were all still excited to know it simply because you thought it.

And what about Maui? What did you notice in the picture of the gargantuan demi-god? The teacher asked the question, and you thought about it. You searched for available answers under the “S” listing. Mom thinks you were looking for “strong.” But it wasn’t there. So you backed out and found another word, which featured a stick man lifting weights with one hand. You clicked on it.

“Easy,” the device said.

Easy. Of course. He’s so strong, he can pick up boats and trees and probably mountains without breaking a sweat. Everything Maui does is easy.

“Jack, that’s so smart,” mom said. And she meant it. You gave a great insight. You saw a picture everyone else saw, and you shared your own, personal, Jack-thought. And it was a cool observation.

Maybe this doesn’t seem like a big deal to you, son, but it is to us. Your thoughts matter to us. Your thoughts are important. Your thoughts tell us more about you, and we want to know you as much as we possibly can. This is why we spend time working on the device even though it’s hard. It’s also why I often say things like, “what are you thinking about, bud?”

I’m explaining this because I am afraid we might sometimes give you the wrong idea. We might be accidentally hurting your feelings. Moms and dads do this kind of thing without ever knowing it, and then when their kids grow up and tell them, everyone feels bad. And one of the biggest ways this happens is when kids feel like they have to perform for their parents’ affection.

Some boys, for example, feel like they have to play football or basketball really well so their dads will be proud of them. Some girls feel like they have to get good grades and be perfect so their moms will think they’re valuable. And others—kids who have autism and have a hard time communicating—might feel like they have to talk to prove their worth. I hope and pray you don’t feel this way, but I know the pressure might be there sometimes.

Remember when we stayed at the cabin last summer? You loved it. We could see it all over your face. Maybe it was the way the lake was nestled into mountains, or how the sun hit the dock in the afternoon. I was sitting with you on the dock one of those afternoons, and you wore a serene smile. I asked you, “What do you like most about this place, Jack?”

You looked at me, and your mouth was open just a little bit. It seemed like you were considering the question and wanted to answer. And for just a moment, I thought you might do it. I thought you might say, “I like the color of the water,” or, “I like having Leeli here.”

Could you tell how much I was hoping for that to happen? And did it make you sad when you couldn’t do it? Did I accidentally put pressure on you to perform?

My dear boy, we have shared fifteen years of life, and of all the things I have spoken to you, this might be the most important: you are enough.

That’s it. You’re enough.

I love it when you can tell us what you think. I love it when you can communicate what you want. But you do not have to do those things to earn our affection. You never did. And if I’ve ever—even for a moment—made you think otherwise, I pray you can forgive me. Because there is a difference between what a boy can do and who a boy is.

Remember the “Jack and Daddy video” on the beach? I told you then that you were “a piece of God’s own daydreams.” I meant it. That is who you are. You are the flesh-and-bone dream of the Creator Himself. You carry His image, and our image, too. You are priceless to us, not because of anything you can accomplish, but because you are our son. You don’t have to talk about the lake or about Moana to prove it. You don’t have to do anything to prove it.

Work time isn’t going away, I’m afraid. It’s part of growing up. Sometimes I don’t like it very much, either. But we are so proud of the way you face the challenges. We know you’re not Maui. We don’t expect you to be like him. None of this stuff is easy. It’s hard, and yet you keep at it.

We’ve told you we want to hear your thoughts, son. Well, it seems like you’re starting to believe us. And now, I am asking you to believe this: we adore you, even when the words don’t come.

Happy Birthday,

Dad

2 replies
  1. Chris Audet
    Chris Audet says:

    Amen! So happy to hear these updates. And so important (for all of us) to remember that we do not need to perform or accomplish all the things to be valuable, valued, and loved.

    Reply
  2. Rachel
    Rachel says:

    Ah this is good to hear. There are infrequent times when spoken language defeats me, when my autistic brain, loses the power of speech, but it is in those times of muteness that I need to know that communication though an electronic device does not make my family love me any less.

    I need to know that they understand that at that moment I cannot speak. But also that they understand that in giving me a bit of patient understanding I will be enabled to communicate in some form. I need them to try to learn my own special language of communication- that may be gestures or sometimes in typing, but in that communication that they see that they are loved by me too.

    Thank you Jason for sharing your thoughts.

    Reply

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